Methods: A qualitative approach with interviews and video-stimulated recall was used. In Part 1, interviews with 19 women with ESBC were held to develop the concept of involvement in TDM and the decision making process used by these women. In Part 2, treatment consultations of a second group of 20 women were digitally videotaped. Several days later, these women and their physicians (separately) viewed their own consultation to describe their DM process and identify the behaviors that facilitated or inhibited involvement in DM. All interviews were taped, transcribed verbatim and analyzed.
Results: Part 1: Most women wanted high quality information soon after diagnosis but many felt that they were left in a void until the surgical or even the medical oncology visit. Most women thought they were heavily involved in a TDM process before, during and after the consultation. The results of the Part 2 pilot testing indicated that videotaping the consultation was feasible. Women liked the opportunity to review information presented in the consultation. They identified how they were involved in the DM process and different ways that the oncologist facilitated or inhibited their involvement.
Conclusions: This study has identified women's perceptions of their involvement in the TDM process, how treatment decisions were made and physicians' behaviors that enhanced or impeded women's involvement in TDM. This information will be useful to patients and physicians for promoting patient involvement in TDM.